Advice from fellow Dementia Friends

What’s your best piece of advice for someone caring for a loved one with dementia?

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Caring for someone with dementia can bring many different emotions and experiences. Sometimes, hearing from someone who understands what you’re going through can make a real difference.

“Enjoy every visit and don’t try and force it into something from the past. Even if on that visit they are not talkative – listen to music together or just sit and spend quality time making different memories. You never know what might spark that familiar sparkle or smile.”

“Get to the groups: singing for the brain, memory cafe’s. You’ll meet people who are going through this and understand, and hear useful tips. I built an amazing friendship group that have become my dementia family.”

Finding local groups and activities can offer opportunities to meet others, share experiences and feel connected. You can search for events in your local area on dementiafriends.org.uk website here.

“Remember they have their moment in time – find a way to celebrate that when you are together. Don’t forget your own moment may be different, and celebrate that, somehow without guilt.”

Dementia may change aspects of someone’s life, but the person behind the diagnosis, their personality, experiences and the connections they have with others still matter.

There is no single way to care for someone with dementia, and everyone’s experience is different, but sometimes a few words from someone who has been there can help us feel a little less alone.